Life interrupted.

I’m constantly striving to be the perfect autism mum when in my heart I know there’s no such thing. Maybe that’s my definition of insanity. Or not, what it boils down to with me is trying to get everything right with Sam, to avoid him becoming stressed, but I make mistakes all the time. I …

No crosses to bear…

I'd like to talk today about how it feels to be a parent of a child with autism. It feels frightening at times, mountainous really, it is stressful for sure, it's tiring. The non stop evolution of our children is tough. I struggle to keep up quite often, whilst also being on high alert! What …

I promise to always follow your beautiful lead

Today has been a good day. A REALLY good day!! Like you all know, Sams speech has been slow. In September 2016 he had nothing. He has so many now, with new ones coming every day The advice that we've used the most was some we got from a speech therapy course when he was …

A shitty day

So this one has taken a few weeks to put down, because I wanted to be in a clear place while I wrote. Sams sleep pattern is so much better than it used to be. Where it used to be 4 or 5 nights he was awake, now it's more like one (Touch wood). Apart …

I am his voice but I don’t speak for him.

I started thinking tonight after I read some comments regarding autism. One mums work was taken out of context by another page and one of the comments on that article was rather hurtful. The lady who commented said something along the lines of people with autism are getting sick of being infantilised. This has had …

A Connor Q & A

A Connor Q & A. My youngest has autism, my eldest is 12 and has anxiety. I thought I’d ask him some questions and tell him he should answer honestly. So today, Connor has been downstairs all afternoon. He does spend a lot of his time up there and away from us. Connor has tinnitus …

Black clouds & rainbows

You all know what it feels like to take the rough with the smooth. Recently we've had an honest to goodness roller coaster ride of roughs and smooths. Depending on my mental state, I sometimes take the lows like a physical thing. Each incident can feel like a black cloud. Each one I’m inhaling until …

Raindrops on roses…

Just me thinking out loud!

Note to self…

When you live in an autism household, the outside world can take on a different hue from time to time, a hazy, dreamlike quality that you don’t fully feel a part of outside society any more. So much of our time is focused on autism and micro managing our life to suit autism that we …

Tantrums v’s meltdowns

Meltdowns come in all shapes and sizes. It can be hard to tell the difference. To parents of a child with special needs that difference is incredibly important. A tantrum is usually with a purpose. To get a reaction, to get what they want etc. A meltdown is a different animal altogether. A meltdown can …